Your cancer team may have a lung cancer or other nurse specialist who is an expert in helping people with your type of cancer.

For more information, you may find the following suggestions helpful:

Mesothelioma UK
The national Macmillan mesothelioma resource centre is a base from which high-quality information is available for patients, carers and healthcare professionals. There is also a freephone number: 0800 169 2409.

British Lung Foundation
Website with information on mesothelioma.

British Thoracic Society
Patient information on lung cancer and links to other websites.

Mesothelioma information centre 
Cancerbackup is a national charity and one of the leading cancer information services. The mesothelioma section of the website covers general information, causes and diagnosis, treatment, clinical trials, resources and support. Order booklets online, or tel: 020 7696 9003 for a printed copy (free to patients).
Telephone free for advice: 0808 800 1234 (to speak to a cancer nurse).

Mesothelioma
Section of the CancerHelp (Cancer Research UK) website. It aims to provide easily readable and comprehensive information about mesothelioma.

Cancer Index (guide to internet resources for cancer). You can use this guide to find worldwide sites on mesothelioma and related subjects.

DIPEx (Database of Individual Patient Experience)
A national charity. Patient experience website. It aims to inform patients’ carers, families, and health professionals too. There are personal stories about how other people have coped with mesothelioma and lung cancer. DIPEx is a website which offers the opportunity to view video, hear audio and read about different patients’ experiences.

Health and Safety Executive
Website contains information on safety and its enforcement in the workplace.

Macmillan Cancer Support
UK charity whose purpose is to improve the quality of life for people living with cancer. They provide practical support through:

CancerLine: 0808 808 20 20 (a free telephone information service staffed by specialist advisers) They also run a benefits advice line for people with cancer and carers on 0800.138 6568

Publications: order via CancerLine, on-line or in writing to
Macmillan Cancer Line, Macmillan Cancer Relief, 89 Albert Embankment, London, SE1 7RU.

Oncolink
University of Pennsylvania (USA) site for both public and professionals. Oncology (cancer study) news and information. Extensive and informative. Patients’ questions & experts’ answers. Latest news. Daily updates.

Ridings Asbestos Support & Awareness Group (RASAG)
RASAG runs the National Mesothelioma Helpline (see separate entry above). Their website has information on asbestos-related diseases and hosts a discussion forum. The Group produce free booklets about mesothelioma. They also have a helpline:

National Mesothelioma Helpline
0113 231 1010
Monday – Friday, 10am-5pm.

A professional and confidential telephone helpline giving practical advice and counselling. Every Tuesday a specialist nurse is available to discuss specific medical issues.

Carers

The charity Cancerbackup produces a useful series of leaflets:

Caring for someone with advanced cancer

Cancer and older people

If you are looking after someone who has fatigue

Hello, and how are you?
A handbok written by people who have had personal expereince of caring for someone with cancer, to help others in a similar situation. Available free by calling the Macmillan Resources Line on: 01344 350310.

Palliative care

See section on palliative and supportive care on this site.

Cruse Bereavement Care
The largest bereavement charity in the UK. It offers help to people trying to cope with death, whatever their circumstances. They have a range of free fact-sheets, as well as books of various cost.

Helpline: 0870 167 1677
Free helpline for young people (12-17 years old): 0808 808 1677
Email: helpline@crusebereavementcare.org.uk